- T.F. Hodge (via observando)
The recent “ALS Ice Bucket Challenge” has become so popular throughout social media networks around the world, that the real purpose behind the campaign has diminished significantly. It’s now just a thing that people are participating in because it’s funny. This completely takes away from the initial movement of awareness regarding ALS. This is why I’ve chosen not to do it – not because I think it’s stupid or I’m better - but because I think it’s more beneficial to learn about a cause before doing something you’re not well informed of.
I respectfully declined the nominations I recently received, because I wasn’t even fully cognisant of why I said yes to my first one. I questioned myself immediately and wondered why I was even going to do the challenge. What was my donation actually going towards? How would it really make a difference? After diving deep into the research of what Amyotrophic lateral sclerosis is, the first person I thought of was my Mother.
She has worked with a young child for many years now, who has been living with Cerebral Palsy since birth. Yes, I know that CP and ALS are very different, but they are also very similar. They both have an impact on the function of the brain and nervous system. My Mom knows first hand what it’s like to support and help someone who has very little control over their physical and mental state. She also had the heartbreaking experience of going through something similar, with her own Mother many years ago, who had Parkinson’s disease – another neurodegenerative disease. My Mom’s experiences, have provided me with a profound understanding of the battles so many people in this world have to face on a daily basis.
I wholeheartedly stand by the people who are well informed, and have genuine interests in raising awareness about ALS - as well as other diseases,
But for those of you who lost sight of why you did the challenge, what your monetary donation actually went towards, and how it has an impact on not only those who are affected but also those around them…I urge you to educate yourselves please!
- (via blinddoptimism)